Chiesi Farmaceutici S.p.A.
Head of Patient Advocacy, Global Rare Diseases
Chiesi Farmaceutici S.p.A., Boston, Massachusetts, us, 02298
Overview
Head of Patient Advocacy, Global Rare Diseases Location: Boston, MA, US Date: Jul 25, 2025 About us
Based in Parma, Italy, Chiesi is an international research-focused pharmaceuticals and healthcare group with 90 years' experience, operating in 30 countries with more than 6,000 employees (Chiesi Group). To achieve its mission of improving people\'s quality of life by acting responsibly towards society and the environment, the Group researches, develops and markets innovative drugs in the three therapeutic areas: AIR (respiration), RARE (rare and ultra-rare diseases), and CARE (care and consumer-facing self-care). We are the largest global pharmaceutical group to be awarded B Corp Certification, recognizing high social and environmental standards. We embrace diversity, inclusion and equal opportunities across cultures, genders, generations, ethnicities, abilities, sexual identities, and other diversities. Chiesi USA Chiesi USA is a specialty pharmaceutical company focused on developing and promoting products for hospital, adjacent specialty and rare disease markets. We are a B Corp and Benefit company awarded Top Employer for six years and certified as a Great Place to Work. We pursue high social and environmental standards to ensure the wellbeing of our people, patients, and communities, offering a work environment that supports purposeful careers and work-life balance. Who we are looking for
Purpose Chiesi is looking for a creative, highly motivated, and compassionate leader who is interested in making a positive impact on the lives of people living with rare diseases in the position of Global Portfolio Head Patient Advocacy, in the Rare Disease business unit. This position works closely with the VP Global Patient Advocacy and is part of the Advocacy Leadership Team. The role leads partnerships with patient community organizations in one of Chiesi\'s strategic rare disease indication portfolios and drives development and execution of a comprehensive patient advocacy strategy that informs decision-making. The Global Portfolio Head provides strategic leadership, mentorship, and operational oversight to ensure patient voice is integrated across the organization and oversees the Patient Advocacy team.
Main Responsibilities
Develop and implement a coordinated global patient advocacy strategy for one of Chiesi\'s key rare disease indication portfolios, aligning with corporate goals and priorities with support from the VP, Patient Advocacy. Serve as an organizational expert on patient advocacy, providing insights, best practices, and guidance across teams within the strategic therapeutic area of responsibility. Enhance the integration and impact of the rare disease Patient Advocacy function. Build and lead a high-performing Patient Advocacy portfolio team, fostering collaboration, innovation, and patient-centered thinking. Identify and implement operational improvements to enhance the team\'s efficiency, effectiveness, and engagement with internal and external stakeholders. Establish and maintain key relationships with advocacy organizations to drive collaboration and education, sharing information on company activities as appropriate. Develop and manage an annual budget for the Advocacy function within the strategic portfolio. Establish clear goals, metrics, and performance standards for the Patient Advocacy team, ensuring alignment with company priorities and industry standards. Provide mentorship and professional development opportunities for team members to expand their expertise and impact. Represent the Advocacy function on key cross-functional portfolio leadership teams. Experience Required
10+ years of experience in the bio-pharmaceutical environment with at least 7 years of relevant experience in rare disease and patient advocacy. 5+ years of experience leading and developing teams, with demonstrated success in building high-performing functions. Bachelor\'s degree in social science, public health, science, or related field; advanced degree preferred. Proven ability to establish and maintain strategic partnerships with advocacy groups, patient leaders, and caregivers. Comprehensive knowledge of global healthcare systems including compliance, legal, regulatory, and public policy considerations that impact the healthcare industry and patient engagement. Experience working internationally, with cultural awareness of rare disease communities and internal stakeholders in different countries. Strong leadership, organizational, and interpersonal skills, with a demonstrated ability to inspire and guide teams toward shared goals. Exceptional communication and relationship-building skills, with an empathetic and patient-focused approach. Ability to work both independently and collaboratively with internal cross-functional teams and diverse external stakeholders. Based in Boston and willing to travel nationally and internationally (approximately 40%). Multi-language skills are a plus. We offer a supportive environment focused on development and impact, with benefits described in our compensation information. Equal Opportunity
Chiesi USA is an equal opportunity employer committed to hiring a diverse workforce. All qualified applicants receive consideration for employment without regard to race, national origin, age, sex, religion, disability, marital status, veteran status, or any other basis protected by local, state, or federal law.
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Head of Patient Advocacy, Global Rare Diseases Location: Boston, MA, US Date: Jul 25, 2025 About us
Based in Parma, Italy, Chiesi is an international research-focused pharmaceuticals and healthcare group with 90 years' experience, operating in 30 countries with more than 6,000 employees (Chiesi Group). To achieve its mission of improving people\'s quality of life by acting responsibly towards society and the environment, the Group researches, develops and markets innovative drugs in the three therapeutic areas: AIR (respiration), RARE (rare and ultra-rare diseases), and CARE (care and consumer-facing self-care). We are the largest global pharmaceutical group to be awarded B Corp Certification, recognizing high social and environmental standards. We embrace diversity, inclusion and equal opportunities across cultures, genders, generations, ethnicities, abilities, sexual identities, and other diversities. Chiesi USA Chiesi USA is a specialty pharmaceutical company focused on developing and promoting products for hospital, adjacent specialty and rare disease markets. We are a B Corp and Benefit company awarded Top Employer for six years and certified as a Great Place to Work. We pursue high social and environmental standards to ensure the wellbeing of our people, patients, and communities, offering a work environment that supports purposeful careers and work-life balance. Who we are looking for
Purpose Chiesi is looking for a creative, highly motivated, and compassionate leader who is interested in making a positive impact on the lives of people living with rare diseases in the position of Global Portfolio Head Patient Advocacy, in the Rare Disease business unit. This position works closely with the VP Global Patient Advocacy and is part of the Advocacy Leadership Team. The role leads partnerships with patient community organizations in one of Chiesi\'s strategic rare disease indication portfolios and drives development and execution of a comprehensive patient advocacy strategy that informs decision-making. The Global Portfolio Head provides strategic leadership, mentorship, and operational oversight to ensure patient voice is integrated across the organization and oversees the Patient Advocacy team.
Main Responsibilities
Develop and implement a coordinated global patient advocacy strategy for one of Chiesi\'s key rare disease indication portfolios, aligning with corporate goals and priorities with support from the VP, Patient Advocacy. Serve as an organizational expert on patient advocacy, providing insights, best practices, and guidance across teams within the strategic therapeutic area of responsibility. Enhance the integration and impact of the rare disease Patient Advocacy function. Build and lead a high-performing Patient Advocacy portfolio team, fostering collaboration, innovation, and patient-centered thinking. Identify and implement operational improvements to enhance the team\'s efficiency, effectiveness, and engagement with internal and external stakeholders. Establish and maintain key relationships with advocacy organizations to drive collaboration and education, sharing information on company activities as appropriate. Develop and manage an annual budget for the Advocacy function within the strategic portfolio. Establish clear goals, metrics, and performance standards for the Patient Advocacy team, ensuring alignment with company priorities and industry standards. Provide mentorship and professional development opportunities for team members to expand their expertise and impact. Represent the Advocacy function on key cross-functional portfolio leadership teams. Experience Required
10+ years of experience in the bio-pharmaceutical environment with at least 7 years of relevant experience in rare disease and patient advocacy. 5+ years of experience leading and developing teams, with demonstrated success in building high-performing functions. Bachelor\'s degree in social science, public health, science, or related field; advanced degree preferred. Proven ability to establish and maintain strategic partnerships with advocacy groups, patient leaders, and caregivers. Comprehensive knowledge of global healthcare systems including compliance, legal, regulatory, and public policy considerations that impact the healthcare industry and patient engagement. Experience working internationally, with cultural awareness of rare disease communities and internal stakeholders in different countries. Strong leadership, organizational, and interpersonal skills, with a demonstrated ability to inspire and guide teams toward shared goals. Exceptional communication and relationship-building skills, with an empathetic and patient-focused approach. Ability to work both independently and collaboratively with internal cross-functional teams and diverse external stakeholders. Based in Boston and willing to travel nationally and internationally (approximately 40%). Multi-language skills are a plus. We offer a supportive environment focused on development and impact, with benefits described in our compensation information. Equal Opportunity
Chiesi USA is an equal opportunity employer committed to hiring a diverse workforce. All qualified applicants receive consideration for employment without regard to race, national origin, age, sex, religion, disability, marital status, veteran status, or any other basis protected by local, state, or federal law.
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