Zevra Therapeutics
Director, Patient Advocacy
Zevra Therapeutics - Boston, Massachusetts, us, 02298
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Overview
Join to apply for the
Director, Patient Advocacy
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Zevra Therapeutics Join to apply for the
Director, Patient Advocacy
role at
Zevra Therapeutics Get AI-powered advice on this job and more exclusive features. About Zevra Therapeutics, Inc.
Applying for this role is straight forward Scroll down and click on Apply to be considered for this position.
We are a rare disease therapeutics company leading with science to make life-changing therapeutics available to patients with significant unmet needs. We involve key thought leaders, physicians, patients, care partners, and advocacy groups in all of our clinical and regulatory development strategies. About Zevra Therapeutics, Inc.
We are a rare disease therapeutics company leading with science to make life-changing therapeutics available to patients with significant unmet needs. We involve key thought leaders, physicians, patients, care partners, and advocacy groups in all of our clinical and regulatory development strategies.
With a keen understanding that drug development often requires creative solutions, we have the insight and expertise to forge new pathways to success that others have missed. By following the data without bias, our transparent narratives and common-sense perspective have successfully overcome complex development challenges to make much-needed therapies available to patients.
Nimble and dauntless, we push boundaries beyond what is thought to be possible and advance new therapies that have the potential to bring meaningful improvement to patients’ lives.
About The Role
The Director, Global Patient Advocacy, will work in close collaboration with relevant stakeholders including medical affairs, commercial, regulatory and clinical development to define the company’s patient advocacy priorities and oversee advocacy strategies and collaborations that educate and activate patients.
Direct patient advocacy relationships and interactions across the portfolio disease states including NPC, UCD, and lead advocacy plan execution. Cultivate successful relationships with global patient advocacy organizations and create and execute education and awareness strategies. Serve as an internal subject matter expert on issues relating to patient advocacy.
The position is based on-site in Boston, MA
.
What You'll Do
Ensure deep understanding of supported disease areas and patient needs to inform our work across the organization Create and execute a strategic and tactical advocacy plan and corresponding budget Successfully engage rare disease advocates, building trust and long-term relationships Establish and maintain key relationships with advocacy organizations to drive initiatives for collaboration and education. Share information on company activities and interests with advocacy organizations as appropriate Collaborate with key internal teams (marketing, regulatory, market access, clinical and business development, medical affairs, corporate communications) on advocacy issues and support their need for patient engagement and insights Develop and manage the advocacy sponsorship budget and process for patient advocacy grant requests Attend and represent Zevra at key advocacy meetings Identify key strategic company representation and advocacy activities at patient conferences and meetings Build a patient centric culture Work on site Monday - Thursday
Qualifications
BS/BA degree in biological sciences, business, marketing or similar field and 10+ years in pharma, biotech industry or patient advocacy An established history experience in patient engagement, advocacy, and/or relations including experience in developing communications and educational resources OR Demonstrated experience implementing organizational strategy with advocacy groups and outcomes
Equal Employment Opportunity Statement
Zevra is an equal opportunity employer that is committed to diversity and inclusion in the workplace. We prohibit discrimination and harassment of any kind based on race, color, sex, religion, sexual orientation, national origin, disability, genetic information, pregnancy, or any other protected characteristic as outlined by federal, state, or local laws.
Notice to External Recruiters
Zevra does not accept unsolicited resumes from agencies or search firms. Recruiters are requested not to contact employees or hiring managers. All candidate submissions must be coordinated through our Human Resources team and require a prior written agreement. Any resumes sent without such an agreement will not create any implied obligation.Seniority level
Seniority levelDirector Employment type
Employment typeFull-time Job function
Job functionOther Referrals increase your chances of interviewing at Zevra Therapeutics by 2x Get notified about new Director of Advocacy jobs in
Boston, MA . Waltham, MA $225,000.00-$290,000.00 3 weeks ago Sr. Director, Patient Advocacy and EngagementChief, Curatorial Affairs and Conservation Boston, MA $240,000.00-$280,000.00 2 months ago Associate Director, Communications & Advocacy Relations Cambridge, MA $160,000.00-$190,000.00 1 week ago Director of Government Relations &City Partnerships Boston, MA $140,000.00-$360,000.00 2 weeks ago Associate Director, Public Affairs & PolicyDirector/Senior Director, Corporate Communications & Investor RelationsAssociate Director, IBD Strategy & Engagements Marketing Lexington, MA $153,600.00-$241,340.00 4 days ago Boston, MA $110,000.00-$115,000.00 1 month ago Director of Government Relations &City PartnershipsAssociate Director, IBD Strategy & Engagements Marketing Lexington, MA $153,600.00-$241,340.00 3 weeks ago ASSISTANT DIRECTOR, MARKETING & COMMUNICATIONS, School of Social Work, AdministrationAssociate Director, IBD Strategy & Engagements Marketing Lexington, MA $153,600.00-$241,340.00 3 weeks ago Associate Director, Global Health Economics Lead, Oncology Business Unit Boston, MA $153,600.00-$241,340.00 3 weeks ago Senior Director Dermatology, Global Medical AffairsSenior Director Dermatology, Global Medical Affairs Boston, MA $250,000.00-$320,000.00 3 days ago Director, US Procurement Digitalization and OperationsAssociate Director, Global Health Economics Lead, Oncology Business Unit Boston, MA $153,600.00-$241,340.00 2 weeks ago We’re unlocking community knowledge in a new way. Experts add insights directly into each article, started with the help of AI.
#J-18808-Ljbffr
Director, Patient Advocacy
role at
Zevra Therapeutics Join to apply for the
Director, Patient Advocacy
role at
Zevra Therapeutics Get AI-powered advice on this job and more exclusive features. About Zevra Therapeutics, Inc.
Applying for this role is straight forward Scroll down and click on Apply to be considered for this position.
We are a rare disease therapeutics company leading with science to make life-changing therapeutics available to patients with significant unmet needs. We involve key thought leaders, physicians, patients, care partners, and advocacy groups in all of our clinical and regulatory development strategies. About Zevra Therapeutics, Inc.
We are a rare disease therapeutics company leading with science to make life-changing therapeutics available to patients with significant unmet needs. We involve key thought leaders, physicians, patients, care partners, and advocacy groups in all of our clinical and regulatory development strategies.
With a keen understanding that drug development often requires creative solutions, we have the insight and expertise to forge new pathways to success that others have missed. By following the data without bias, our transparent narratives and common-sense perspective have successfully overcome complex development challenges to make much-needed therapies available to patients.
Nimble and dauntless, we push boundaries beyond what is thought to be possible and advance new therapies that have the potential to bring meaningful improvement to patients’ lives.
About The Role
The Director, Global Patient Advocacy, will work in close collaboration with relevant stakeholders including medical affairs, commercial, regulatory and clinical development to define the company’s patient advocacy priorities and oversee advocacy strategies and collaborations that educate and activate patients.
Direct patient advocacy relationships and interactions across the portfolio disease states including NPC, UCD, and lead advocacy plan execution. Cultivate successful relationships with global patient advocacy organizations and create and execute education and awareness strategies. Serve as an internal subject matter expert on issues relating to patient advocacy.
The position is based on-site in Boston, MA
.
What You'll Do
Ensure deep understanding of supported disease areas and patient needs to inform our work across the organization Create and execute a strategic and tactical advocacy plan and corresponding budget Successfully engage rare disease advocates, building trust and long-term relationships Establish and maintain key relationships with advocacy organizations to drive initiatives for collaboration and education. Share information on company activities and interests with advocacy organizations as appropriate Collaborate with key internal teams (marketing, regulatory, market access, clinical and business development, medical affairs, corporate communications) on advocacy issues and support their need for patient engagement and insights Develop and manage the advocacy sponsorship budget and process for patient advocacy grant requests Attend and represent Zevra at key advocacy meetings Identify key strategic company representation and advocacy activities at patient conferences and meetings Build a patient centric culture Work on site Monday - Thursday
Qualifications
BS/BA degree in biological sciences, business, marketing or similar field and 10+ years in pharma, biotech industry or patient advocacy An established history experience in patient engagement, advocacy, and/or relations including experience in developing communications and educational resources OR Demonstrated experience implementing organizational strategy with advocacy groups and outcomes
Equal Employment Opportunity Statement
Zevra is an equal opportunity employer that is committed to diversity and inclusion in the workplace. We prohibit discrimination and harassment of any kind based on race, color, sex, religion, sexual orientation, national origin, disability, genetic information, pregnancy, or any other protected characteristic as outlined by federal, state, or local laws.
Notice to External Recruiters
Zevra does not accept unsolicited resumes from agencies or search firms. Recruiters are requested not to contact employees or hiring managers. All candidate submissions must be coordinated through our Human Resources team and require a prior written agreement. Any resumes sent without such an agreement will not create any implied obligation.Seniority level
Seniority levelDirector Employment type
Employment typeFull-time Job function
Job functionOther Referrals increase your chances of interviewing at Zevra Therapeutics by 2x Get notified about new Director of Advocacy jobs in
Boston, MA . Waltham, MA $225,000.00-$290,000.00 3 weeks ago Sr. Director, Patient Advocacy and EngagementChief, Curatorial Affairs and Conservation Boston, MA $240,000.00-$280,000.00 2 months ago Associate Director, Communications & Advocacy Relations Cambridge, MA $160,000.00-$190,000.00 1 week ago Director of Government Relations &City Partnerships Boston, MA $140,000.00-$360,000.00 2 weeks ago Associate Director, Public Affairs & PolicyDirector/Senior Director, Corporate Communications & Investor RelationsAssociate Director, IBD Strategy & Engagements Marketing Lexington, MA $153,600.00-$241,340.00 4 days ago Boston, MA $110,000.00-$115,000.00 1 month ago Director of Government Relations &City PartnershipsAssociate Director, IBD Strategy & Engagements Marketing Lexington, MA $153,600.00-$241,340.00 3 weeks ago ASSISTANT DIRECTOR, MARKETING & COMMUNICATIONS, School of Social Work, AdministrationAssociate Director, IBD Strategy & Engagements Marketing Lexington, MA $153,600.00-$241,340.00 3 weeks ago Associate Director, Global Health Economics Lead, Oncology Business Unit Boston, MA $153,600.00-$241,340.00 3 weeks ago Senior Director Dermatology, Global Medical AffairsSenior Director Dermatology, Global Medical Affairs Boston, MA $250,000.00-$320,000.00 3 days ago Director, US Procurement Digitalization and OperationsAssociate Director, Global Health Economics Lead, Oncology Business Unit Boston, MA $153,600.00-$241,340.00 2 weeks ago We’re unlocking community knowledge in a new way. Experts add insights directly into each article, started with the help of AI.
#J-18808-Ljbffr